Dee Dee’s Story

Hi. My name is Dee Dee and I have been living with Crohn’s for 22 years and have had over 60 surgeries/procedures related to this disease. Has been one wild journey. I was misdiagnosed several times and then once we got the diagnosis it just went downhill. They have been some rare instances where I…

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David’s Story

Suffered from Ulcerative colitis from age 18 months till I was 18. Been an ostomate for 48 years. Past National President of the United Ostomy Association of America. Passionate about breaking the stigma regarding ostomy surgery. I use the mantra I learned years ago in that “the ostomy is what you have, it is NOT…

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Damien’s Story

Hello, My journey happen to start in 2006 with severe abdominal cramping and pain. The doctors first thought it was appendicitis before running so many different tests to find out the problem was Crohn’s disease. Honestly at that time, I was 23 and I had never heard about such a thing and never gave it…

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Rebecca’s Story

I was first diagnosed with colon cancer in 1997. My Gastroenterologist (oncologist) stated I needed emergency surgery. He stated that I would probably be going home with a bag. At that time, they had you admitted for surgery the night before so you would know what the bags looked like and they had me put…

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Lakecia’s Story

I was diagnosed with anal cancer on 2/17/2021. I went through chemotherapy and weeks of radiation. At the time, It was the hardest thing I had ever been through. After weeks of treatment, the tumor was still there, so I had to have surgery to remove the cancer. On 1/27/22 I had Abdominal Perineal Resection…

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Top Tips to Dress Comfortably When Wearing an Ostomy Bag

Wearing an ostomy bag is not easy. It can make it difficult for you to dress up. Besides, you might feel that it is visible to everyone and would leave you feeling overwhelmed. The fear of everyone noticing your bag can prevent you from going out. However, you do not have to worry as the…

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Virgie’s Story

Hi friends! I am a 62 year old female. I have had my ileostomy since I was 18 due to severe ulcerative colitis. I have had many ups and downs through the years, but I am happy to say no problems with my Ostomy! I have had to change appliances and wafers over the years…

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Franco’s Story

My story started in May 2012 when my family Dr. retired and my wife found a new Dr. We had a visit with her and because my son was getting married that week in the USA, we asked if we could postpone the visit. After the wedding, we went to see her and she ordered…

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Brendan’s Story

In December 2012, I had major cancer surgery for colorectal cancer. I was given a temporary ileostomy for a 4 month period. In April this was removed and I was placed back in so-called normal bowel operational mode and the pouch removed. It was then my real nightmare began. I was very fortunate that I…

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Rachaél’s Story

I had emergency surgery on 10/8/21 due to a ruptured colon. The worst pain I’ve ever felt in my life. This was my 22nd surgery in 12 years. I woke up to find I had a new addition to my body- a colostomy bag. While spending 5 weeks recovering in the hospital, I joined an…

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