Dennis’s Story

My doctor told me that I would have reversal surgery and iliostomy would come off in a few years. It’s been 42 years and I still have it. Because of inflammation and colitis flare ups I was never able to get reversed. Most of the time I forget I have it. It’s become part of…

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Donna’s Story

I was a happy healthy 35 year old when I was admitted to hospital with bloody diarrhea. I was diagnosed with ulcerative colitis and when steroids failed I was given an emergency total colectomy. Months in hospital with extreme weight loss and sepsis and a further 2 surgeries and long hospital stays over the space…

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Lori’s Story

Hi! I’m Lori. I’ve had a jejunostomy for one year now, and I really struggled with finding the right appliance. I cried many tears, but I’m finally getting a handle on it after realizing I needed a convex system. I lost over 200 pounds and I deal with the pain of an hereditary neuromuscular disease…

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Gem’s Story

Hello! I was diagnosed with crohns colitis at the age of 11 and managed with medication until 16. After this I had 10 years(!) med free which was amazing! When I fell pregnant at 26 everything changed and my body went in to melt down. I ended up being admitted to hospital so many times…

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Anna’s Story

Hi everyone! My name is Anna and I am an ostomate! I have an ileostomy for a year now due to severe endometriosis and am dealing with it everyday. On my instagram I give everyone an inside in my daily life and struggles or tips and tricks to live with an ostomy but also the…

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