Posts Tagged ‘ostomate’
Edit’s Story
I was diagnosed with Crohn’s disease at the age of twenty. My symptoms started with the constant bowel movements, at some point almost twenty a day, and a rapid twenty-pound weight loss. The doctor informed me that my case was one of the worst and most advanced he has seen. I had been using medication…
Read MoreLuciana’s Story
I WILL TELL YOU what my ostomy means to me: freedom and no fear! I’ve never thought that an ostomy would give me freedom. Four years ago, when I became an ostomate I first thought that my life would end and many other possibilities in life would not exist anymore. I was wrong. I had…
Read MoreLauren’s Story
My name is Lauren and I’m 28. I’ve been an ostomate now for 6 and half years. I have my ileostomy due to Hirschsprung’s disease, mega colon, whole gut slow transit and colonic inertia. After nearly losing my life several times due to my invisible illnesses I’ve become extremely proud of myself. I’ve moved countries and…
Read MoreThanksgiving Tips for Ostomates
With thanksgiving around the corner, it is important to celebrate one of the most important events of the year. Thanksgiving is where we all get together to eat turkey, stuffed gravy, turnips, sweet potatoes, fruit salad, homemade dinner rolls, and dessert. However, having an ostomy can make things difficult. To survive thanksgiving with an ostomy,…
Read MoreDennis’s Story
My doctor told me that I would have reversal surgery and iliostomy would come off in a few years. It’s been 42 years and I still have it. Because of inflammation and colitis flare ups I was never able to get reversed. Most of the time I forget I have it. It’s become part of…
Read MoreDonna’s Story
I was a happy healthy 35 year old when I was admitted to hospital with bloody diarrhea. I was diagnosed with ulcerative colitis and when steroids failed I was given an emergency total colectomy. Months in hospital with extreme weight loss and sepsis and a further 2 surgeries and long hospital stays over the space…
Read MoreLori’s Story
Hi! I’m Lori. I’ve had a jejunostomy for one year now, and I really struggled with finding the right appliance. I cried many tears, but I’m finally getting a handle on it after realizing I needed a convex system. I lost over 200 pounds and I deal with the pain of an hereditary neuromuscular disease…
Read MoreGem’s Story
Hello! I was diagnosed with crohns colitis at the age of 11 and managed with medication until 16. After this I had 10 years(!) med free which was amazing! When I fell pregnant at 26 everything changed and my body went in to melt down. I ended up being admitted to hospital so many times…
Read MoreAnna’s Story
Hi everyone! My name is Anna and I am an ostomate! I have an ileostomy for a year now due to severe endometriosis and am dealing with it everyday. On my instagram I give everyone an inside in my daily life and struggles or tips and tricks to live with an ostomy but also the…
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