Hi! I’m Lori. I’ve had a jejunostomy for one year now, and I really struggled with finding the right appliance. I cried many tears, but I’m finally getting a handle on it after realizing I needed a convex system.
I lost over 200 pounds and I deal with the pain of an hereditary neuromuscular disease through exercise. Though I’m pushing 60, I want to prove that despite having an ileostomy and being on TPN 12 hours a day a person can still live a somewhat normal lifestyle. I also wear braces on both legs and need to use a walker, but do yoga, walk and ride a stationary bike for many hours a day. I am an undercover rock star, but let’s keep it between us, okay? – Lori B.